The Funny Thing About Parenting A Special Angel
So here's the thing about being a parent of a child who is medically complex or 'Special Needs'.
You dream of having a day off. A day that would give you the chance to take a long shower, or go out for lunch with a friend or even just take a nap.
You constantly LIVE for someone else.
You see a child doing something as simple as playing with blocks, and you have an internal battle with yourself to keep your feet planted in that spot instead of running away to cry the heartache away.
You live each day working with a child who literally depends on you for EVERY SINGLE THING and may continue that for the rest of their life.
You love watching other peoples children because you miss out on the little things with your own.
You work so hard & fight for the chance to get a home nurse or even just someone you trust to come help watch your child just to get a minute to BREATH.
But here is the funny part-
The moment that you get that break, or you get that nap, you have a mental war with yourself to walk away from that beautiful, innocent, perfect child.
You sit down to interview a home nurse and the only thing running through you mind is.. HOW CAN I LEAVE MY CHILD WITH ANYONE ELSE?
The fear of not being with that incredible human is all consuming and at some points even debilitating.
You fear that you letting go for an hour with result in that perfect human feeling deserted.
But most of all, you fear that you will miss out on a last for that child. A last glance, last smile, a last giggle, possibly even a last breath.
The other funny thing, is that regardless of how mentally, physically and emotionally exhausted you are, you wouldn't trade a minute of it for the world.You have been taught thru the actions of your child how perfectly imperfect the world can be. How blessed we are to live each and every day we are given.
Thru the innocent giggles, & the simple movement of their hand brushing yours, or maybe even a tiny grasp of your finger in their hand, you feel the most unconditional love possible.
The funny thing about being a parent to a child who is medically complex, is that contrary to popular belief, its the best thing that has ever happened to you. It has helped open your eyes to appreciate the little things that every child does, even when you have bad days, its all worth it.
It is HARD, & yes you have the bad days, but the little wins, those are what teach us the most important lessons that we can learn in life.
You dream of having a day off. A day that would give you the chance to take a long shower, or go out for lunch with a friend or even just take a nap.
You constantly LIVE for someone else.
You live each day working with a child who literally depends on you for EVERY SINGLE THING and may continue that for the rest of their life.
You love watching other peoples children because you miss out on the little things with your own.
You work so hard & fight for the chance to get a home nurse or even just someone you trust to come help watch your child just to get a minute to BREATH.
But here is the funny part-
The moment that you get that break, or you get that nap, you have a mental war with yourself to walk away from that beautiful, innocent, perfect child.
You sit down to interview a home nurse and the only thing running through you mind is.. HOW CAN I LEAVE MY CHILD WITH ANYONE ELSE?
The fear of not being with that incredible human is all consuming and at some points even debilitating.
You fear that you letting go for an hour with result in that perfect human feeling deserted.
But most of all, you fear that you will miss out on a last for that child. A last glance, last smile, a last giggle, possibly even a last breath.
The other funny thing, is that regardless of how mentally, physically and emotionally exhausted you are, you wouldn't trade a minute of it for the world.You have been taught thru the actions of your child how perfectly imperfect the world can be. How blessed we are to live each and every day we are given.
Thru the innocent giggles, & the simple movement of their hand brushing yours, or maybe even a tiny grasp of your finger in their hand, you feel the most unconditional love possible.
The funny thing about being a parent to a child who is medically complex, is that contrary to popular belief, its the best thing that has ever happened to you. It has helped open your eyes to appreciate the little things that every child does, even when you have bad days, its all worth it.
It is HARD, & yes you have the bad days, but the little wins, those are what teach us the most important lessons that we can learn in life.
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